Caregiving Archive

Dementia poses many challenges, both for people struggling with it and for those close to them. Understanding common behaviors and learning to handle situations that arise can help families and caregivers.

Caregivers may benefit from substitute caregivers who can give them a break. This "respite care" might come from a family member or friend who volunteers to help out. Or it can come from outside services such as adult or child day care centers, short-term stays (seven to 30 days) in a skilled nursing or memory care facility, professional child care or nanny services, or private duty care (which can send someone to be with a loved one up to 24 hours per day).

Burnout — whatever the cause — can lead to depression and anxiety, and affect your relationships and ability to function. But it's possible to replenish your energy and enjoyment of life.

When navigating the health care system becomes challenging, a number of professionals can help. Some, such as home care aides or certified nursing assistants, can assist with errands such as getting to the doctor and picking up medications. Others, such as Aging Life Care Professionals or patient advocates, can develop and run a person's overall care plan, negotiate with insurance companies, arrange to pay medical bills, research treatment options, hire and manage home care helpers, and more.

Palliative care is a medical specialty meant to help people during many different stages of health. Many people who might benefit from palliative care do not receive it; if more people understand it, more people can take advantage of it.

There is no way to prepare for the many shades of grief, which can lead to illness as well as distress. While each person navigates grief differently, the experience of others and broad advice on how to cope may offer comfort.

Caring for someone can be stressful, and this can be even more challenging if a loved one is not ready to accept help. Caregivers who find themselves in this situation should take steps to enlist others' help to ease their burden and should take time for themselves to reduce their stress levels and protect their mental health.

Here's what to ask when email and phone calls are the main way to help loved ones in a long-term care facility.

Managing a loved one's care in a nursing home or an assisted living facility has always been challenging. And it's harder now that visitation is extremely limited to protect residents from COVID-19. So how can you check on your loved ones, make sure they're being cared for properly, and let them know you're there for them?

Direct communication

If your loved one is able to communicate well, a daily phone or video call is crucial. But remember that when you ask basic questions — "How are you feeling?" "Are you eating and drinking enough?" "Are you getting enough sleep?" — you may not get an honest answer. "They may just tell you what you want to hear," says Dr. Suzanne Salamon, associate chief of gerontology at Harvard-affiliated Beth Israel Deaconess Medical Center.